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Making Tracks for Celiacs Today
More than 500 people pounded the pavement in Rochester today, to help raise awareness about a disease whose cause remains a mystery.
"You may have other symptoms one of a dozen different symptoms and be undiagnosed and all you really need to do is eat a different diet and you can be healthy again".
Amy VanDussen's daughter Elie has an auto-immune condition called celiac disease.
She can not eat gluten, a protein found in wheat.It could cause damage to her intestines, and make her very ill. Today, Amy and Elie joined others with the condition at the ninth annual "Making Tracks for Celiacs" walk in Rochester.
6 year old Elie Schelemanow said the purpose of the event is "To raise money so people around the world can get better from celiac disease."Organizers hope to raise more than $35,000 to help educate people about celiac disease.
1 out 133 people in the U.S. have it and may not even know.
Kathy Oaks has celiac disease, and is Vice President of the Rochester Celiacs Support Group. She says "You can have a lot of long term illnesses like arthritis, thyroid diseases, any auto immune diseases. After you've had several diagnosed then they might diagnose you with celiac disease."Many people can cure their symptoms simply by changing their diet. Amy says it may have been a tough transistion, but to have Elie well again, it was all worth it.
"You could even go through a period of mourning. Really missing the wheat, missing the lifestyle that you had, but in time you find out that health is the real option there".
The money raised today goes toward the Rochester Celiac Support Group and the University of Maryland.
The school is the main hub for research on celiac disease.
News 8 and Fox Rochester are proud sponsors of the event.
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